The Havoc of NF, Part II

In the previous post, you saw some possibilities of what neurofibromatosis can do to a body. Here is Ella, our sweet Ella-Bella, with some of those possibilities (and some that are already realities) listed.

 Is it upsetting? YES. I felt sad making this, even started to get emotional and walked away from the computer once it was finished, deciding to do the blog post tomorrow. But you know what? Terri, Chris, Claire, and Ella don't get the luxury to walk away from NF ever. NEVER. Unless, and hopefully until, a cure is found. That is why Hope for Ella exists: to do everything within our power to light fires under the powers that be to fuel research into this disorder. No parent should have to sit and wait for what's next, and then wait for the medical profession to decide what or if treatment is possible; and remember, treatment is only for the effects of neurofibromatosis, there is neither treatment nor cure for neurofibromatosis. Stay tuned, learn, share with everyone you know! Awareness is the key to changing Ella's future.