Monday, February 25, 2013

The Havoc of Neurofibromatosis

Neurofibromatosis has seemingly limitless effects neurofibromatosis on the body. As vast as the possible effects, shown on the diagram, may seem they are only some of what may happen. This disorder moves in stealth mode and can appear ANYWHERE in the body, at any time, in many forms. More research is not only needed, it is NECESSARY. Doctors can only treat the symptoms and effects of neurofibromatosis, they can not treat the disorder itself. Hope for Ella will do everything we can to push research towards specific treatment and, hopefully, a cure. 
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